Amidst the hectic life am trying to make some regular inputs into the blog on happenings in the ivory towers and outside of it – particularly Bristol life and all else. If you want to avoid the work and politics just go to the end headed ‘fun stuff’!
On the work front life continues to be hectic, with all our interview data collected for our genetics and Deafhood project, we are now at the stage where we’re able to analyse data and the website, in BSL by Clive Mason, is up and running – hope people will contribute to the discussion forums to help with data collection on genetics issues 🙂
There’s only just over 6 months of the project left! Sociological research on genetics and Deafhood were put into perspective by the news that two geneticists who specialise in genetics and deafness won a prestigious ‘brainprize’ award of one million euros. [Thanks to Alison for this information.] Eh?? They will receive their award from none other than our Liz, the monarch. Their work includes the use of mice to carry out research experiments. It would be interesting to see what the one million will be spend on and a video has been released of the details of the award – a sign language version of this should be available soon.
I attended an interesting conference on the development of attempts to protect the use of genetic information via the use of anti-discrimination legislation at the European Level, which was held in Brussels. The key lead has been taken from the USA where they have already a law in place called the Genetic Information Non-Discrimination Act (GINA). There was a lot of overlapping with Disability Human Rights legislation and I found it striking that the lawyers and academics were looking to laws that have been developed thanks to the disabled people’s civil rights movement, and this includes Deaf activists.The law is chiefly to prevent discrimination against people in employment and insurance.
However, I am still trying to get over the concept of ‘after-birth abortion’: a euphemism for killing a newborn baby that was published in a peer-reviewed academic journal and received a strong reaction in defence of the original article. As the journal editors explain, this is not a new concept, but has been addressed by philosophers such as Peter Singer. This issue is a hard one to stomach coming as it does from self-confessed liberals.
Bristol Deaf Centre Issues
It’s good to be able to write positively (for now) following a meeting at Bristol Deaf Centre by Bristol City Council’s Health and Social Care department, last Wednesday 7th March. It was a cordial and frank exchange of views on the future of the departments services to the local Deaf people.
My summary of the meeting is that the Council recognise their actions could lead to the closure of the Deaf Centre that would leave Bristol Deaf people in a crisis situation (by the sudden withdrawal of funding that should have happened last November, plus the departure of staff who are under Avon Pension fund). So there will be the appointment of a Development Worker (over a period of 9 months) that represents, to me, a ‘stay of execution’.
Hopefully the local Bristol Deaf community will combine and communicate to spend that time with the new Development worker, developing a vision and future for the Bristol Deaf community – whether it means retaining the Deaf Centre or a different vision.
A lot of people have been working really hard to bring about this situation, including those who work at the Deaf centre as well as the Interim Working Group, legal advisors, and many unnamed individuals. There remains a lot to do, but there is a bit of time to sort things out. The Board of Directors, in particular, needs urgent support, which may become apparent in the next few weeks and months.
This news follows on from the news that hard campaigning has helped to save Elmfield Deaf School – so campaigning does work and massive waves of hands for those who worked hard to save the school!
Lighter stuff! running, football and rodolfo
I completed my first half marathon in Bath in the time of 1.59.21!! I’m well pleased. It was, unexpectedly, hot! Making for a tougher challenge, but fun and enjoyable, especially taking part with friends Pascale, Alison and John (cheered on by Naomi!), and taking in the Bath scenery.
£145 was raised for Bristol Deaf Football club, who are doing extremely well and have decided to enter a hearing league from September 2012! Then BDFC can show the world what they are really made of!
Rodolfo, from Mexico, had been on a visit to the Centre for Deaf Studies for two months and we had a leaving do for him last Friday – first a meal at Browns and then a drink-up at Woods. It’s been super having him with us and hope to make a visit to Mexico one day!
I’m back in the swimming pool, continuing my efforts to learn to swim – trying to get to grips with the breaststroke at the mo.
Future events upcoming
BSL debates at Bristol Deaf Centre are all set for this Thursday 15th March, and the BSL Symposium on Monday 19th March that I’m attending – there’s a banquet too on 18th March but cannot make that one.
The brand new blog the limping chicken is looking good so far! Would be good to see more entries in BSL…which reminds me…!